What is Cri du Chat Syndrome ?
Cri du Chat Syndrome ("Cry of the cat" in French) is a genetic disorder caused by the loss or misplacement of genetic material from the fifth chromosome. It was first identified in 1963 by Professor Lejeune, who also identified the genetic cause of Downs Syndrome. He described the syndrome after the sound that many of the babies and young children make when crying.

This cry, along with some of the other notable features, is so characteristic of the syndrome that a doctor can usually identify the condition before a chromosome analysis has taken place.

As well as the physical features, Cri du Chat causes a varied level of mental handicap. There are a few children who attend mainstream education, but the majority of the children need more specialised education. The long term outlook for children with Cri du Chat is quite good.



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What is the support group for ?

Provides support and friendship for families and carers throughout Britain, ( and maybe now internationally ! )
Raises awareness of Cri du Chat Syndrome amongst the medical profession and the public.
Raises funds to promote research through carefully selected projects.
Gives information and advice to families and professionals.
Organises the Annual Conference. This is a two day event for professionals, families and other interested parties. It is the chance for families who may not normally be able to see each other to meet and talk. For professionals it gives them the chance to see many Cri du Chat children in a non-medical environment. Everybody who attends comes away knowing more !.
Publishes a newsletter with general items of interest for families and carers.

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Addresses
National Co-ordinator Chairman Treasurer

Mrs Angie Stokes Mr Ray Clarke Mr Simon Stokes
7 Penny Lane 5 Latimer Drive 1 Coulson Close
Barwell Steeple View Whetstone
Leicester Laindon Leicester
England Essex England
LE9 8HJ England LE8 6PT
SS15 4AD



If you have any questions about the CdC Support Group, or would like more information about Cri du Chat, please contact our National Co-ordinator, Angie Stokes - cdcssg@yahoo.co.uk

The Registered Charity Number is 1044942